--- title: Dementia & Caregiving description: Dementia is a group of progressive brain disorders, Alzheimer's disease being the most common. You will learn how the main types differ, how diagnosis works, what treatments exist, and how to care for a family member while protecting your own health. category: health-medicine subcategory: medicine-and-health-sciences difficulty: beginner, intermediate, advanced url: /subject/dementia-and-caregiving --- # Dementia & Caregiving Dementia is a group of progressive brain disorders, Alzheimer's disease being the most common. You will learn how the main types differ, how diagnosis works, what treatments exist, and how to care for a family member while protecting your own health. ## Available Resources 2 Books • 1 Courses • 1 Websites • 1 Papers ## Papers ### 1. Dementia Prevention, Intervention, and Care: 2024 Report of the Lancet Standing Commission **Author:** Gill Livingston et al. The 2024 report of the Lancet standing Commission, led by Gill Livingston, synthesising evidence on 14 modifiable risk factors, diagnosis with fluid biomarkers, disease-modifying treatments, managing symptoms, and supporting people with dementia and their families. A long, heavily referenced scientific review. **Difficulty:** Advanced | **Language:** English | **Price:** Free **Link:** https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(24)01296-0/fulltext **Tags:** dementia prevention, modifiable risk factors, alzheimer's disease, dementia diagnosis, disease-modifying treatments, systematic review ## Podcasts ### 1. Dementia Matters **Author:** Nathaniel Chin Podcast from the Wisconsin Alzheimer's Disease Research Center hosted by geriatrician Dr. Nathaniel Chin. Interviews researchers, clinicians and caregiving experts on diagnosis, blood biomarkers, new treatments, clinical trials, and caregiver wellbeing, with over 200 episodes since 2017. Keeps learners current in a fast-moving field (anti-amyloid drugs, blood tests) without hype, since guests are the researchers themselves. **Difficulty:** Intermediate | **Language:** English | **Price:** Free **Link:** https://dementiamatters.adrc.wisc.edu/ **Tags:** alzheimer's disease, dementia research, blood biomarkers, clinical trials, caregiver wellbeing ## Books ### 1. Loving Someone Who Has Dementia: How to Find Hope while Coping with Stress and Grief **Author:** Pauline Boss A short book by family therapist Pauline Boss, who developed the concept of ambiguous loss, on the grief and stress of caring for someone who is physically present but psychologically changing. Offers guidelines for managing caregiver stress, family conflict, and self-care. **Difficulty:** Beginner | **Language:** English | **Price:** Paid **Link:** https://www.amazon.com/dp/1118002296?tag=edmonddante07-20 **Tags:** ambiguous loss, caregiver stress, grief, family caregiving, dementia ### 2. The 36-Hour Day: A Family Guide to Caring for People with Alzheimer Disease, Other Dementias, and Memory Loss (8th Edition) **Author:** Nancy L. Mace, Peter V. Rabins The standard family guide to dementia care, first published in 1981 and revised in 2025. Covers diagnosis, medical treatment, daily care, behaviour changes, legal and financial planning, care facilities, and avoiding caregiver burnout, written by a dementia educator and a Johns Hopkins psychiatrist. **Difficulty:** Beginner | **Language:** English | **Price:** Paid **Link:** https://www.amazon.com/dp/1421452464?tag=edmonddante07-20 **Tags:** family caregiving, alzheimer's disease, dementia care, caregiver burnout, care planning ## Youtubes ### 1. Teepa Snow's Positive Approach to Care **Author:** Teepa Snow Books explain what is happening; these videos show exactly how to do the physical and verbal parts of care (approach, cueing, bathing), which text conveys poorly. Free video library from occupational therapist Teepa Snow demonstrating hands-on dementia care skills: approaching and communicating with a person who has dementia, bathing, dressing, handling resistance and distress, and adapting to changes across Alzheimer's, Lewy body, frontotemporal, and vascular dementia. **Difficulty:** Beginner | **Language:** English | **Price:** Free **Link:** https://www.youtube.com/@teepasnowvideos **Tags:** dementia care skills, positive approach to care, communication with dementia, personal care, challenging behaviours ## Courses ### 1. Understanding Dementia **Author:** Wicking Dementia Research and Education Centre Free, self-paced 21-hour online course from the University of Tasmania's Wicking Dementia Research and Education Centre. Four modules move from brain changes and disease progression to diagnosis, risk factors, person-centred care, and supporting people with dementia in the community. The most rigorous free structured course on dementia: explains the neuropathology behind symptoms before moving to care, so learners understand why behaviours change. **Difficulty:** Beginner | **Language:** English | **Price:** Free **Link:** https://mooc.utas.edu.au/course/33 **Tags:** dementia, neuropathology, dementia risk factors, person-centred care, alzheimer's disease ## Websites ### 1. Alzheimer's and Related Dementias The National Institute on Aging's public hub on Alzheimer's and related dementias, covering the main dementia types, symptoms and diagnosis, risk factors, FDA-approved treatments including lecanemab and donanemab, and practical caregiving guidance, reviewed by NIH scientists. Treatment page is current for the anti-amyloid era (describes lecanemab and donanemab dosing, amyloid PET/CSF testing and ARIA side effects). **Difficulty:** Beginner | **Language:** English | **Price:** Free **Link:** https://www.nia.nih.gov/health/alzheimers-and-dementia **Tags:** alzheimer's disease, dementia types, dementia diagnosis, anti-amyloid therapy, caregiving --- *This content is part of Dantes.io - Your Treasure Map to Knowledge* *Curated by humans at Dantes.io. Personal study use welcome; republishing this curation requires permission (team@dantes.io).* View this page online: https://dantes.io/subject/dementia-and-caregiving